17 ‘Los síntomas embarazosos’ de la fibromialgia no hablamos acerca

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1. El tartamudeo 

Meghan Emily Agresti-Tobin dijo tartamudeo cuando estoy en el dolor o estresado. Yo tenía un tartamudeo como un niño, pero se fue hasta el año pasado. Si estoy en más de una cantidad normal de dolor, o si estoy estresado debido a la niebla fibro; Tartamudeo hasta el punto que acabo de renunciar en lo que estaba tratando de decir. Se llevó a mí cada vez más de una persona hogareña. Becca Ellis  agregó que  tartamudeo así, pero relacionados, su ansiedad. Sólo ocurre con las personas que no conozco pero es super embarazoso.

Lea también  “¿Cómo afecta la fibromialgia Speech”

2. Equilibrio

Nadene Taylor Springer compartir que  la repentina sin aviso caída y ya no puede levantarse. Emma Ogden  también añadió que a ella  Los problemas de equilibrio, tropezar o caer por nada que parezca que he tenido una bebida para que la gente me ignoran en el suelo

3. Control de la vejiga

Más de 100 de los miembros han enumerado en este síntoma embarazoso. Pis en mí mismo no tienen ningún control de la vejiga más. Las porciones de miembro tienen nos dicen que tienen problemas de control de la vejiga y su tan embarazoso. Janey Dee  dice  Pérdida de control de la vejiga cuando hace mucho frío. O casi accidentes. Absolutamente horrible.

4. Dentro de la capacidad de hacer plan (o Cancelación de Planes)

Gwenn Dombroski Karten says The most embarrassing thing for me is the inability to make plans ahead or commitments because I never know how I will feel and how much energy and pain I will have on any one day. I have lost friends because I won’t commit and I appear “wishy washy”. Some days I can only sit. What kind of life is it?. Debbie Shaw added to it that This is so true. Some of my friends have even made the decision for me that I probably, “Couldn’t go anyway.” They r making decisions for me & leaving me out! Then I see their pics of having fun on Facebook & I just start crying. Its not jealousy. It’s just realizing that Fibro has taken another part of my life!

Carrie Tremper says Not being able to commit to plans in the future and canceling last minute. My friends and family understand, mostly, but I still come off as a flake and unreliable. I’m not unreliable, my body is.

5. IBS

Lori Mahone says: IBS is embarrassing. Especially when you’re out on a date with someone new, and it hits while you are still eating dinner! Read more Here.

6. Sweating

Leslie Bellao says, I can be fine talking, sitting…anything and it seems that a faucet is turned on on top of my head. My hair ends up dripping…..it is so embarrassing.

Dayla Lorenz shares The sweating make me smell stronger than i think i should smell ,i use a lot of deodorant. Debbie Hedgecoke sums up by this “When the sweat runs in rivers down my face”

Liana Gettel says The hot flashes. I’ll turn beat red and feel like I’m on fire 🔥. It happens a lot. People at my office are constantly complaining about how cold it is and I’m running my fan and turning all the thermostats down around the office.

Diana Pierce says Sweating all of a sudden. Doesnt matter if I’m relaxing or shopping etc. ,all of a sudden my hair is wet and sweat dripping off my face.It is embarrassing and gross. I also have to stop talking because I forget what I was saying.

7. Inability to Talk (Dyslexia)

Jenny Crowson Lucas says I speak words like someone reads with dyslexia. I say things backwards, but I don’t know I do. It won’t be the whole sentence just a few of the words!! Very embarrassing!!

Cindy Dixon says: Loss of words is the most embarrassing symptom of Fibromyalgia because it’s almost impossible to hide from others. Not being able to speak words mid-sentence makes me feel stupid, it makes me feel like the person I’m speaking to thinks that I am stupid. Loss of one word leads to another and then another as I then totally loose my train of thought and start speaking with my hands and the other person starts trying to fill in my blank words as if we’re playing charades. Panic sets in usually as my mind feels like someone has taken my head off my shoulders and shaken it vigorously before putting it back on. Speech gets slurred and thoughts don’t come together for conversation. It’s easier to just sit back in silence or just avoiding socializing altogether.

Amber Singletary Barratta says I cannot speak. I sound like I’m talking like a baby, babbling/mumbling all the time. Always at a lot for words as well. And incontinence.

8. Clogged nasal n post nasal drip

Clogged nasal n post nasal drip …. sore throat ,and tonsil stone’s are also the embrassing part of fibro

9. Dropping or Losing Hand Grip

Getting uncontrollable shakes in my hands. I have to grab it so no one would notice

10. Brain Fog

The brain fog and the fatigue. Nothing is more frustrating than searching your brain for a word and coming up with nothing so you have to just stop your story. Fatigue because it’s embarrassing to constantly have to change plans or worse cancel plans constantly because you’re too tired to go.

Sandy Maclean says: Forgetting words, names of characters in films; names of films!? So frustrating!

Teresa Chesney says: Brain fog when you know what you want to say but can’t gather the words to do so,or to pronounce a word that you know as well as your name.

Michelle Mathews says: Fibro Fog is the absolute worst, forgetting what your doing,forgetting names, it is embarrassing when out been in tears several times for not being able to articulate something and not remember.

 

12. Interrupting Others.

I do that all the time too. I never thought it was anxiety but it is. I fear I won’t be heard.

Debbie Shaw says :I interrupt people all the time now. I’m so full of anxiety. I can’t wait for people to finish a sentence. So rude of me!!! 

Crystal Alana Maelstrom says:  it’s like while you know you can function and think clearly you want to get it all out before your brain and body goes “dunh duh duh” on you again…like by doing that you are saving yourself the embarrassment of looking retarded, but in your hurry to get it out…you come across as rude…most frustrating.

13. Dark Circles

Nearly black eyes and I don’t mean the eyes itself I mean around them it looks like someone punched me. yes the permanent dark circles…like you never sleep …or are very deathly ill…

Ann Holt Green says : Face neck turn bright red i think its internal hot flashes or inflammation.

14. Muscle Spasm

Heidi Ellis says: I’ve been driving on the road when all of the sudden my leg(s) get weak, start to spasm and lock up. Then I need to pull off the side of the road until it stops. It’s scary!. Read More on “How to live on Muscle Spams with Fibromyalgia” Here.

15. Hot Spots

Hot spots or that’s what I call them. I can randomly get bright red splotches on my face, neck, chest and arms. It can happen when I’m upset but at times it’s without warning. It’s very embarrassing to have it happen while out in public. It looks like I’ve been slapped in the face. It is horrible.. so embarrassing feel like ya need to cover up but in reality you are burning up.. so you cant. Face neck turn bright red i think its internal hot flashes or inflammation

16. Inability to Express

Leslie Lehmann says: The inability to tell someone “where it hurts worse.” It’s a whole symphony of pain and I really can’t pick out just one instrument. The cognitive dysfunction doesn’t help, either. Even if I could pick one part of the pain and call it worse, I probably wouldn’t be able to describe it.

For instance, if I sweat and then the slightest breeze hits it and I get a chill…it feels like being sliced by thousands of ice knives. But a chill that doesn’t involve moisture, just feels like a chill always felt, just tons worse because it also feels like the muscle aches of flu. Doctors ask and then when I describe it, it doesn’t lead to any treatment and they act as if I’m crazy. Sherri Louis added that Not being able to think or come up with words I’m trying to think of.

 

17. Awkward Motions:

Ashley Bingham says: I find it to be embarrassing when my nerves get that burn and tingle started because it makes my body look like a fish flopping. We all get a good laugh about it though. Gave myself a black eye. An swinging arms or legs without control an hitting someone. Was funny but not nice lol.

When my back or leg gives out & I trip or almost fall. I say almost because I catch myself with whatever is near including a wall. Walking one minute then out of nowhere can’t. Especially when i am with other people. They look at me like you were walking fine a second ago what happened??

Cuando trato de levantarse de una posición sentada, pero mi baja espalda, las caderas y el sacro no están cooperando. Es como yo estoy encerrado en su lugar tienen ninguna manera de conseguir hasta que no sea mediante el uso de mis brazos para empujar a mí mismo fuera de su posición sentada. Lo hago mientras trata de no llamar la atención sobre mí mismo. Una vez más el peor cuando otros están alrededor y sólo quiero al menos parece normal. Tratando de tener una conversación pero no puede recordar palabras sencillas y fáciles. Estoy bien educados, pero suena como que no soy cuando no puedo pensar en una palabra o cómo explicar lo que la palabra no se me ocurre of.- Bridgett Biblia.

¿Cuál es tan su embarazoso síntomas, háganoslo saber en los comentarios a continuación.

 

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17 ‘Los síntomas embarazosos’ de la fibromialgia no hablamos acerca

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About MafibromaVie 6024 Articles
Bonjour, je n'ai même pas encore 40 ans, je suis fibromyalgique, j'ai un petit garçon de 2 ans, et je vis dans cette souffrance, mais dû a ma personnalité je ne peux pas rester sans rien faire, car ça me tue encore plus que la douleur. Je précise que j’écris le français que a 5 ou presque 6 ans maintenant et je parle et écris aussi d'autres langues, donc je fais des erreurs de orthographe et de grammaire. Le problème c'est que je ne peux presque plus marcher (béquilles et difficile), être assis durant plus de 15 à 30 minutes ça me tue le cul cul et le dos, même pour soulever mon petit qui pèse a peine 12 kg, mais on dirait un sac de ciment du type 50 kg. Lui changer la couche me fait trembler les jambes et on dirait qu'on me plante un couteau au fond du dos, même mes épaules et bras quand je soulève ces fesses me font mal, même quand je lui donne la soupe avec une petite cuiller mon bras se fatigue vite et les douleurs arrivent, L'autre jour on lui donnant la soupe j'ai appuyé mon bras sur le plateau de ça chaise et il a commencé à trembler violemment, que même mon petit de 2 ans a eu peur. Sur ma page j'assume l'identité de tous les fibromyalgiques du moins de ceux qui veulent me suivre sous le pseudonyme de "MafibromaVie" ou de "FiFi le clown", finalement nous sommes tous des Clows au yeux de trop de gens, d’État, de Pays, et de Communauté dans notre cas la UE! Je ne suis pas une personnalité et je ne recherche aucune reconnaissance publique. Je suis simplement une personne comme toutes les autres, comme vous qui souffrait peut être aussi de Fibromyalgie, et qui a ouvert une simple page privée ou j'ecris ma vie de fibromyalgique pour suivie médicale par mon médecin. Ben après avec le temps, l'histoire a changé beaucoup de monde a commencer a me suivre 50,100,1000 et maintenant plus de 3000. Je parlais plus de moi au début et maintenant plus de nous et pour vous, ainsi c'est crée une page de partage, aide, soutien, et de discussion pour tous les fibros.

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