A Fibromyalgia Poem for Christmas


When I was much younger, labels were everything to me. Everything I owned had to have the same label as the thing the next person had. One item in particular that stands out in my mind is penny loafers, the only thing to wear to school with a pleated skirt and knee socks. Remember those?

The only ones I wanted were Bass Weejuns. There were many other penny loafer brands that looked nearly identical and were much cheaper. But in my world, if they weren’t made by the Bass company and they weren’t the Weejuns style, you just didn’t wear them. My mother often objected to my brand preferences, but in this instance, she was easily persuaded. Luckily for me, I had narrow feet, and these were the only penny loafers made in a narrow width.

Kids today are no different. My granddaughter’s Christmas list contained only items made by Lululemon. I’ve never shopped for athletic clothing. Before fibromyalgia reduced my ability to participate in anything requiring special clothing, I would have worn my loosest, baggiest, most comfortable clothes to stretch and sweat in.

Today’s kids have special clothing — special kinds for every activity and all with special labels. I suspect there are similar products available at a much more reasonable price. But even if there were, she wouldn’t want them. And I understand this. I’m the Bass Weejuns girl. I get it.

Thankfully, I’ve outgrown that stage of my life. Today, comfort is king in my world. Labels be damned! And where gifts are concerned, homemade and/or handmade is always my preference. There was a time when I was an artsy-craftsy kind of person. I had the energy required to shop for the materials needed and I really enjoyed making things for my home as well as to give as gifts. I was also a seamstress and delighted in constructing items I’d seen in stores for a much higher price. One year I even made a life-size doll, complete with wardrobe, for my 4-year-old niece. I must confess that I seemed to like it a whole lot more than she did.

These days I have neither the energy to shop for the materials required nor the motivation to create gifts to present to friends and family for the holiday season. I’m sorry to say that I’ve resorted to Amazon like the rest of the world. Nevertheless, something made by hand and by heart has so much more meaning to me.

In that spirit, I’d like to share with you, my readers, the Fibromyalgia Poem I wrote some years ago.

The words are as true for me now as they were then. I hope each of you will relate to some, if not all of them, and will share these sentiments with the important people in your life.

Wishing you a joyful Holiday Season and a New Year filled with successful strategies for living your best life.

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About MafibromaVie 5522 Articles
Bonjour, je n'ai même pas encore 40 ans, je suis fibromyalgique, j'ai un petit garçon de 2 ans, et je vis dans cette souffrance, mais dû a ma personnalité je ne peux pas rester sans rien faire, car ça me tue encore plus que la douleur. Je précise que j’écris le français que a 5 ou presque 6 ans maintenant et je parle et écris aussi d'autres langues, donc je fais des erreurs de orthographe et de grammaire. Le problème c'est que je ne peux presque plus marcher (béquilles et difficile), être assis durant plus de 15 à 30 minutes ça me tue le cul cul et le dos, même pour soulever mon petit qui pèse a peine 12 kg, mais on dirait un sac de ciment du type 50 kg. Lui changer la couche me fait trembler les jambes et on dirait qu'on me plante un couteau au fond du dos, même mes épaules et bras quand je soulève ces fesses me font mal, même quand je lui donne la soupe avec une petite cuiller mon bras se fatigue vite et les douleurs arrivent, L'autre jour on lui donnant la soupe j'ai appuyé mon bras sur le plateau de ça chaise et il a commencé à trembler violemment, que même mon petit de 2 ans a eu peur. Sur ma page j'assume l'identité de tous les fibromyalgiques du moins de ceux qui veulent me suivre sous le pseudonyme de "MafibromaVie" ou de "FiFi le clown", finalement nous sommes tous des Clows au yeux de trop de gens, d’État, de Pays, et de Communauté dans notre cas la UE! Je ne suis pas une personnalité et je ne recherche aucune reconnaissance publique. Je suis simplement une personne comme toutes les autres, comme vous qui souffrait peut être aussi de Fibromyalgie, et qui a ouvert une simple page privée ou j'ecris ma vie de fibromyalgique pour suivie médicale par mon médecin. Ben après avec le temps, l'histoire a changé beaucoup de monde a commencer a me suivre 50,100,1000 et maintenant plus de 3000. Je parlais plus de moi au début et maintenant plus de nous et pour vous, ainsi c'est crée une page de partage, aide, soutien, et de discussion pour tous les fibros.

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