This syndrome is often confused with other rare diseases such as fibromyalgia, Ehlers-Danlos syndrome.
Professor Claude Hamonet of the Créteil Faculty of Medicine of Paris-Est-Créteil University and author of numerous scientific publications on Ehlers-Danlos syndrome, indicates some characteristic signs that make it possible to diagnose the syndrome. Among these symptoms:
– Joint pain and around the joints.
– Feeling tired when you wake up.
– Disorders of the control of voluntary movements.
– Joint instability responsible for sprains.
– Thinning and pallor of the skin showing the veins.
– Hypermobility of the joints.
– Gastroesophageal reflux and / or vomiting.
– Presence of bruises or unexplained red spots.
– Hypersensoriality, exacerbation of the senses
The medical team of the Ehlers-Danlos consultation led by Professor Hamonet, indicates that “the lack of knowledge of the signs of the syndrome leads (…), mainly because of pain, to other diagnostic orientations, better known in rheumatology such as spondyloarthritis. ankylosing, rheumatoid arthritis, Sjogren’s pyre, osteoarthritis.
The most common mistake is fibromyalgia. (…) Currently, the signs used to establish the diagnosis of fibromyalgia are an authentic copy / glued of those of the Ehlers-Danlos syndrome. “
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